Welcome to the community for people who receive infusions, caretakers, medical professionals and others curious about the Infusion Life.
the beginning
After experiencing chronic illness for a couple of decades I was diagnosed in 2018 with Functional B Cell Deficiency which is a primary immune deficiency disorder.
Since my Infusion Life began I sought community only coming to realize that many other people who have various conditions also live the Infusion Life. My aim is to create community to bring us all together for shared experience and story of the Infusion Life across conditions.
There are many categories and conditions that lead people to the Infusion Life. See the list below. As always, if you don’t see a condition or category represented reach out to me.
Categories of Infusion Recipients
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Psoriasis/Psoriatic Arthritis(PA), Rheumatoid Arthritis (RA), Lupus, Multiple Sclerosis(MS), Vasculitis, Sjögren’s Syndrome, Miyositis, Hepatitis, Scleroderma, Ankylosing Spondylitis,
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Crohns, Colitis, IBD
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Pompe, Fabry, Gaucher Disease, Lysosomal storage disease, Anskylosing Spondylitis, Enzyme replacement therapies,
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Severe Hydration, Electrolyte Imbalances, Malnutrition, Pain Control, Chelation
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CIDP/Neuropathy, Guillan-Barré Syndrome, Myasthenia Gravis, Multiple Sclerosis (MA) some types, Autoimmune Encephalitis
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Organ transplant immunosuppression Treatments for Rejection, Conditioning Treatments
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Hemophilia, Von Willebrand disease, Anemia, Iron Deficiency
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Those receiving Immunotherapy in conjunction with or after Chemotherapy: Lung, Breast, Gastrointestinal, Head and Neck, other solid tumors, some hematologic cancers (Leukemia, Lymphoma, Myeloma)
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Primary (IVIG and SCIG) (B Cell deficiencies, Common Variable Immunodeficiency(CVID), Selective IgA Deficiency, X-Linked Agammaglobulenimia); Severe Combined Immunodeficiencies-(XLA Bruton’s, Wiskott-Aldrich Syndrome, Ataxia-telangiectasia) and Secondary Immunodeficiency (after cancer treatment, transplant and HIV)
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Severe Bacterial Infections, Resistant Infections, Sepsis, Long-Term Antibiotics
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The Infusion Life
The Infusion Life
The Infusion Life